Calendar An icon of a desk calendar. Cancel An icon of a circle with a diagonal line across. Caret An icon of a block arrow pointing to the right. Email An icon of a paper envelope. Facebook An icon of the Facebook "f" mark. Google An icon of the Google "G" mark. Linked In An icon of the Linked In "in" mark. Logout An icon representing logout. Profile An icon that resembles human head and shoulders. Telephone An icon of a traditional telephone receiver. Tick An icon of a tick mark. Is Public An icon of a human eye and eyelashes. Is Not Public An icon of a human eye and eyelashes with a diagonal line through it. Pause Icon A two-lined pause icon for stopping interactions. Quote Mark A opening quote mark. Quote Mark A closing quote mark. Arrow An icon of an arrow. Folder An icon of a paper folder. Breaking An icon of an exclamation mark on a circular background. Camera An icon of a digital camera. Caret An icon of a caret arrow. Clock An icon of a clock face. Close An icon of the an X shape. Close Icon An icon used to represent where to interact to collapse or dismiss a component Comment An icon of a speech bubble. Comments An icon of a speech bubble, denoting user comments. Ellipsis An icon of 3 horizontal dots. Envelope An icon of a paper envelope. Facebook An icon of a facebook f logo. Camera An icon of a digital camera. Home An icon of a house. Instagram An icon of the Instagram logo. LinkedIn An icon of the LinkedIn logo. Magnifying Glass An icon of a magnifying glass. Search Icon A magnifying glass icon that is used to represent the function of searching. Menu An icon of 3 horizontal lines. Hamburger Menu Icon An icon used to represent a collapsed menu. Next An icon of an arrow pointing to the right. Notice An explanation mark centred inside a circle. Previous An icon of an arrow pointing to the left. Rating An icon of a star. Tag An icon of a tag. Twitter An icon of the Twitter logo. Video Camera An icon of a video camera shape. Speech Bubble Icon A icon displaying a speech bubble WhatsApp An icon of the WhatsApp logo. Information An icon of an information logo. Plus A mathematical 'plus' symbol. Duration An icon indicating Time. Success Tick An icon of a green tick. Success Tick Timeout An icon of a greyed out success tick. Loading Spinner An icon of a loading spinner.

Family of Archie Battersbee vow to call for ‘change’ after his death

Archie Battersbee (Hollie Dance/PA)
Archie Battersbee (Hollie Dance/PA)

The family of Archie Battersbee have said they “want something good to come out of this tragedy” as they vowed to call for “change”.

The 12-year-old died on Saturday in the Royal London Hospital in Whitechapel, east London, after weeks of legal wrangling.

Archie had been in a coma since he was found unconscious by his mother Hollie Dance at his home in Southend, Essex, on April 7.

He was being kept alive by a combination of medical interventions, including ventilation and drug treatments.

Archie Battersbee court case
Archie’s mother Hollie Dance (Aaron Chown/PA)

Doctors treating the schoolboy for the last four months declared Archie to be “brain-stem dead”, prompting a lengthy but ultimately failed legal battle by his family to continue his life support treatment in the hope he would recover.

In recent days, his parents had made bids to the High Court, Court of Appeal and European Court of Human Rights to have him transferred to a hospice to die, but these were rejected.

Barts Health NHS Trust had said Archie’s condition was too unstable for a transfer and that moving him by ambulance to a different setting “would most likely hasten the premature deterioration the family wish to avoid, even with full intensive care equipment and staff on the journey”.

In a statement, released through the Christian Legal Centre, which has been supporting the family’s case, the family said: “Yesterday we lost our beautiful boy, Archie. He has fought against all the odds since April, and we are so proud of him.

Archie Battersbee court case
Archie Battersbee (Hollie Dance/PA)

“We are thankful for the huge amount of support we’ve received from so many different people. We are grateful to our legal team and others who have stood with us as we have faced these difficult challenges.

“We want something good to come out of this tragedy and the horrendous experience we have been put through by the system.

“No parent or family must go through this again. We have been forced to fight a relentless legal battle by the Hospital Trust while faced with an unimaginable tragedy.

“We were backed into a corner by the system, stripped of all our rights, and have had to fight for Archie’s real ‘best interests’ and right to live with everything stacked against us.

“This has now happened too often to parents who do not want their critically ill children to have life-support removed.

Archie Battersbee court case
A person lights a candle outside the hospital (Aaron Chown/PA)

“The pressure of the process has been unbelievable.

“There must be an investigation and inquiry through the proper channels on what has happened to Archie, and we will be calling for change.”

On Saturday, Alistair Chesser, chief medical officer at Barts Health NHS Trust, said: “Archie Battersbee passed away on Saturday afternoon at The Royal London Hospital after treatment was withdrawn in line with court rulings about his best interests.

“Members of his family were present at the bedside and our thoughts and heartfelt condolences remain with them at this difficult time.

“The trust would like to thank the medical, nursing and support staff in the paediatric intensive care department who looked after Archie following his awful accident.

“They provided high quality care with extraordinary compassion over several months in often trying and distressing circumstances.

“This tragic case not only affected the family and his carers but touched the hearts of many across the country.”

Ms Dance has previously called for reform through “Charlie’s Law”.

In 2017, Chris Gard and Connie Yates became involved in a public battle with doctors over the treatment of their son, Charlie Gard.

Since the death of Charlie, Mr Gard and Ms Yates have been campaigning for “Charlie’s Law”, which would give parents of sick children more support and choice in the treatment of their child.

Charlie suffered from a rare inherited disease – infantile onset encephalomyopathy mitochondrial DNA depletion syndrome (MDDS).

Doctors caring for the boy at Great Ormond Street Hospital, in London, said life support treatment should end, while his parents wanted to take him for treatment in New York.

A High Court judge ruled in favour of Great Ormond Street doctors and said Charlie should be allowed to die with dignity before Charlie’s parents failed in a series of attempts to overturn the decision.

Charlie died in July 2017, aged 11 months.