Oliver was the
inspiration to get Nicolla on the Way
 But for Nicolla Nelson (30),
a care worker at Hawthorn Children’s Day Centre in Mayfield, Dalkeith, inspiration came in the form of five-year-old Oliver Murfin.
Oliver suffers from
Leigh’s encephalopathy, a terminal illness, which in his case is causing his brain to degenerate, leaving him crawling instead of walking, and unable to talk.
Impressed
Nicolla has been Oliver’s key worker, providing
one-to-one daily care, for two-and-a-half years.
She was so impressed by the work done at Rachel House, and the difference in Oliver after his visits there, that she decided to use a week’s holiday to walk the West Highland Way and raise money for our campaign.
Nicolla explained, “I’d heard about CHAS and knew of the campaign The Sunday Post was running, but the main reason I decided to do the walk was definitely Oliver.
“Our centre, in partnership with social work, caters for vulnerable children or those with special needs.
“I’ve seen how Oliver’s visits to Rachel House really make a difference. My aunt and my cousin, who were raising money for other charities, walked with me.”
Despite enduring blisters on her feet and fluid on the knee, Nicolla struggled on and was determined to complete the 96-mile course.
She said, “It was difficult at times, but definitely worth it. About a month before the walk I got family and friends involved in sponsoring me. We started out on April 4, walked about 20 miles a day and took five days to complete the walk.”
“Very special”
Oliver’s mother Caroline said, “It was very special to us that, despite having no experience of hill walking, Nicolla took time out to raise money for CHAS, as well as being part of Oliver’s ongoing care. The money raised is very important.
“Over the last two years we have made quite a few trips to Rachel House and Oliver absolutely loves it.
“When he comes back we really notice a change in him.
“My husband Andrew and I and our daughter, Charlotte, who is eight, have found Rachel House an incredible lifeline.
“We have been able to meet and share experiences with families in similar situations.
“Oliver needs one-to-one care, and a lot of attention. We found out about his condition when he was only 18 months old, when we noticed he was a little behind other children.
“Despite his illnesses, he remains bright and likes to get the most out of life.
“He has ups and downs but always fights back. Nicolla has a very special relationship with him and I wouldn’t want anyone else looking after him.”
Nicolla’s hard work paid off and her efforts raised a total of
£757.80. |
You can e-mail us at:
hospice@sundaypost.com
|
Oliver with his mum Caroline (left) and Nicolla.
